COVID19 Sentinel

Managing COVID-19 Long-haul Illnesses

Currently, the medical and public health communities don't have a good handle on COVID-19, let alone how to define its long-term, chronic phase. "We don't have a huge body of evidence at this point," says Mehta, a researcher at John's Hopkins. Outside of a few small studies from the United Kingdom, most evidence of Long COVID has been reported anecdotally through grassroots efforts like the Body Politic COVID-19 Support Group, Survivor Corps, Patient-Led Research for COVID-19, and Long Haul COVID Fighters. Until recently, there hasn't been many resources devoted to long-haulers. Now, a year into the pandemic, as more individuals continue to struggle with the long-term effects of the disease, the focus is shifting. More research is forthcoming, including a new initiative from the National Institutes of Health and studies at institutions including Johns Hopkins and Mount Sinai focused on their clinic patients.

About The Long-haul Foundation

The COVID19 Long-hauler Research Foundation is a 501 (c)(3) tax-exempt non-profit corporation that is dedicated to helping people recover from the SARS-2 COVID-19 Virus. Governments and the press have focused almost all of their attention on the COVID-19 pandemic and the acute stage of this illness and mortality statistics. However, very little attention has been paid to the very large number of survivors of SARS-2 and the lasting long-term effects that they suffer from.

About SARS-2 COVID-19 Long-haul Disease

According to a study published in the Annals of Clinical and Translational Neurology, even after the acute COVID-19 infection cleared, an overwhelming number of people who contracted the SARS-2 COVID-19 virus report a string of neurological problems including brain fog, fatigue, dizziness, headaches, and numbness and tingling. Another study from the University of Washington that was published in February found that 32.7% of COVID-19 outpatients and 31.3% of hospitalized patients developed long-haul symptoms that included hemorrhages, blood clots, cardiac myopathies, digestive disorders, sleep disturbance, loss of taste and smell, among others. Currently there are over 100 reported Long-haul illnesses.

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About Our Research

The Foundation operates as a Community of Long-haulers who participate in basic, clinical and epidemiologic research using a Social Network and mobile data collecting tools that is specifically designed to engage Long-haul subjects.

About Long-haul Support Tools & Network

The Foundation provides a complete set of tools so that Long-haul survivors can track and monitor their progress as we help them return to a healthy life. We provide our volunteers with the ability to attend Forums, Participate in Groups, Chat with one another and Blog and record a wide variety of clinical and health data that is used to better understand the extent of disability; measure recovery, and assist your clinicians better understand your disability.